Person-centred Care Around the World

This directory of person-centred care organisations around the world was produced as part of an international environment scan of the field of person-centred care undertaken by Health Policy Partnership. This useful tool highlights the leading international centres working on similar aspects of person-centred care to the Health Foundation. The tool can help to identify person-centred care research, measurement and implementation ‘hot spots’ in different settings globally. The tool enables collaboration between those working on person-centred care by providing key information on the type of work being undertaken on person-centred care. Please share this tool with contacts and colleagues to encourage greater collaboration.

I’m Still Me: A Narrative For Coordinated Support For Older People

Care coordination should be a means to achieving specific outcomes, rather than an end in itself. In turn, it is important that these outcomes reflect what patients want. In December 2014, National Voices, Age UK and UCLPartners jointly published I’m Still Me, a document that focuses on what older people consider to be the most important outcomes of coordinated support. The report is based on a variety of research methods, including 74 semi-structured interviews with older individuals. The research identifies a number of outcomes which are key to older people, such as maintaining their independence and retaining their own choice in decision making. I’m Still Me also includes a series of ‘I statements’ that summarise what older people have said they want their support to look like. For example: "I am supported to be independent"; “I can do activities that are important to me”; “I can maintain social ...

The Users’ Perspective: What Integrated Care should look like

At the International Conference on Integrated Care 2014, Robert Johnstone, Trustee of the International Alliance of Patients’ Organisations, gave a talk titled "The Users’ Perspective: What Integrated Care should look like". Having had chronic rheumatoid arthritis since the age of three, he shared his personal story of moving away from being “a very passive recipient of care” to becoming "a self-managing patient”. When he was about fourteen years old, he told his rheumatologist that eating acidic food seemed to make his pain worse. The rheumatologist replied that this was not possible, so because he trusted his doctor he kept eating acidic food and feeling pain. Later in his life, he progressively learned to listen to his own body and to work out what was good and what was bad for him. He gradually reduced his use of medications until he stopped taking them completely while using complementary therapies and focusing ...

The Users’ Perspective: What Integrated Care should look like

At the International Conference on Integrated Care 2014, Robert Johnstone, Trustee of the International Alliance of Patients’ Organisations, gave a talk titled "The Users’ Perspective: What Integrated Care should look like". Having had chronic rheumatoid arthritis since the age of three, he shared his personal story of moving away from being “a very passive recipient of care” to becoming "a self-managing patient”. When he was about fourteen years old, he told his rheumatologist that eating acidic food seemed to make his pain worse. The rheumatologist replied that this was not possible, so because he trusted his doctor he kept eating acidic food and feeling pain. Later in his life, he progressively learned to listen to his own body and to work out what was good and what was bad for him. He gradually reduced his use of medications until he stopped taking them completely while using complementary therapies and focusing ...

Voices on person-centred care

What is person-centred care to a patient, a physician, a nurse, a hospital head of department, an industry representative and a researcher? How do these people, who all have experience of receiving or working with person-centred care, see person-centred care from their perspectives? Short film clips from the University of Gothenburg Centre for Person-centred Care - GPCC. GPCC is an in terdisciplinary research centre, established in January 2010, with the support of the Swedish government's strategic investment in health and care research. Uniquely GPCC has evaluated the effects of person-centred care in controlled studies. This has established that person-centred care is capable of enhancing the efficiency of the care process. Apart from considerable monetary savings resulting from amongst other things shorter hospital stays, significant positive effects from a patient perspective have been seen, as care is adapted to each individual person and his or her resources are made use of.

Voices on person-centred care

What is person-centred care to a patient, a physician, a nurse, a hospital head of department, an industry representative and a researcher? How do these people, who all have experience of receiving or working with person-centred care, see person-centred care from their perspectives? Short film clips from the University of Gothenburg Centre for Person-centred Care - GPCC. GPCC is an in terdisciplinary research centre, established in January 2010, with the support of the Swedish government's strategic investment in health and care research. Uniquely GPCC has evaluated the effects of person-centred care in controlled studies. This has established that person-centred care is capable of enhancing the efficiency of the care process. Apart from considerable monetary savings resulting from amongst other things shorter hospital stays, significant positive effects from a patient perspective have been seen, as care is adapted to each individual person and his or her resources are made use of.

Patient-centred resistance exercise improves muscle strength, health status and pain intensity in fibromyalgia—a randomized controlled trial

Introduction

Fibromyalgia (FM) is characterized by persistent widespread pain, increased pain sensitivity and tenderness. Muscle strength in women with FM is reduced compared to healthy women. The aim of this study was to examine the effects of a progressive resistance exercise program on muscle strength, health status, and current pain intensity in women with FM.

Methods

A total of 130 women with FM (age 22–64 years, symptom duration 0–35 years) were included in this assessor-blinded randomized controlled multi-center trial examining the effects of progressive resistance group exercise compared with an active control group. A person-centred model of exercise was used to support the participants’ self-confidence for management of exercise because of known risks of activity-induced pain in FM. The intervention was performed twice a week for 15 weeks and was supervised by experienced physiotherapists. Primary outcome measure was isometric knee-extension force (Steve Strong®), secondary outcome measures were health ...

Person-centred care after acute coronary syndrome, from hospital to primary care - A randomised controlled trial

Highlights

• Person-centred care in the recovery after an acute coronary syndrome event,
• Details of a co-created health plan to produce a partnership between patients and health care professionals,
• The transition of care continuing the partnership from in-hospital care to primary care,
• Improved self-efficacy by including a partnership compared to standard care alone.

Aim

To evaluate if person-centred care can improve self-efficacy and facilitate return to work or prior activity level in patients after an event of acute coronary syndrome.

Method

199 patients with acute coronary syndrome < 75 years were randomly assigned to person-centred care intervention or treatment as usual and followed for 6 months. In the intervention group a person-centred care process was added to treatment as usual, emphasising the patient as a partner in care. Care was co-created in collaboration between patients, physicians, registered nurses and other health care professionals and documented in a health plan. A team-based partnership ...

Health-care improvements in a financially constrained environment

Although the European Council agreed on common values such as good quality, universally accessible care in 1996, those values are now under threat. Health expenditure in all European Union (EU) countries between 1996 and 2013 increased from 7·9% to 9·5% of gross domestic product. There is a need to adapt to a financially constrained environment.

WE CARE is an EU Seventh Framework Programme consortium tasked to propose a research and development roadmap for innovative, cost-contained, quality care. The roadmap should not only consider efficacy from clinical trials but also community effectiveness, including the appropriateness of services provided.

Person-centered care - ready for prime time

Long-term diseases are today the leading cause of mortality worldwide and are estimated to be the leading cause of disability by 2020. Person-centered care (PCC) has been shown to advance concordance between care provider and patient on treatment plans, improve health outcomes and increase patient satisfaction. Yet, despite these and other documented benefits, there are a variety of significant challenges to putting PCC into clinical practice. Although care providers today broadly acknowledge PCC to be an important part of care, in our experience we must establish routines that initiate, integrate, and safeguard PCC in daily clinical practice to ensure that PCC is systematically and consistently practiced, i.e. not just when we feel we have time for it. In this paper, we propose a few simple routines to facilitate and safeguard the transition to PCC. We believe that if conscientiously and systematically applied, they will help to make PCC the ...

Partnership, Person-Centredness in Health Care

Person-centred care is an emerging concept in health care. Many people ask what is new about it, and as a matter of fact many health care professionals believe that they work in a person-centred way already. But shifting to a person-centred care practice often involves a profound change in culture and structure, and the key is a different approach in seeing the patient as a partner. The main thing is about being able to listen. Being able to listen to the patient and co-create a care plan; to create a partnership in health care.

The University of Gothenburg Centre for Person-centred Care - GPCC, performs research, education and innovation in person-centred care. Many of the centre’s projects are performed in partnership with Sahlgrenska University Hospital, one of the biggest in Europe, which is closely linked to the University via the The Sahlgrenska Academy.

This short film sets the scene by ...

Partnership, Person-Centredness in Health Care

Person-centred care is an emerging concept in health care. Many people ask what is new about it, and as a matter of fact many health care professionals believe that they work in a person-centred way already. But shifting to a person-centred care practice often involves a profound change in culture and structure, and the key is a different approach in seeing the patient as a partner. The main thing is about being able to listen. Being able to listen to the patient and co-create a care plan; to create a partnership in health care.

The University of Gothenburg Centre for Person-centred Care - GPCC, performs research, education and innovation in person-centred care. Many of the centre’s projects are performed in partnership with Sahlgrenska University Hospital, one of the biggest in Europe, which is closely linked to the University via the The Sahlgrenska Academy.

This short film sets the scene by ...

GPCC Person-centred care research centre web site

This research centre web site contains a range of information, films, presentations, resources and links; from basic information on person-centred care to information on a wide range of individual research projects from health and elderly care and rehabilitation. It also contains news, events, scientific publications and implementation.

The Gothenburg University Centre for Person-centred Care (GPCC) is an interdisciplinary research centre, established in January 2010, with the support of the Swedish government's strategic investment in health and care research. Uniquely GPCC has evaluated the effects of person-centred care in controlled studies. This has established that person-centred care is capable of enhancing the efficiency of the care process. Apart from considerable monetary savings resulting from amongst other things shorter hospital stays, significant positive effects from a patient perspective have been seen, as care is adapted to each individual person and his or her resources are made use of.

(A summary commentary ...

GPCC Person-centred care research centre web site

This research centre web site contains a range of information, films, presentations, resources and links; from basic information on person-centred care to information on a wide range of individual research projects from health and elderly care and rehabilitation. It also contains news, events, scientific publications and implementation.

The Gothenburg University Centre for Person-centred Care (GPCC) is an interdisciplinary research centre, established in January 2010, with the support of the Swedish government's strategic investment in health and care research. Uniquely GPCC has evaluated the effects of person-centred care in controlled studies. This has established that person-centred care is capable of enhancing the efficiency of the care process. Apart from considerable monetary savings resulting from amongst other things shorter hospital stays, significant positive effects from a patient perspective have been seen, as care is adapted to each individual person and his or her resources are made use of.

(A summary commentary ...

The University of Gothenburg Centre for Person-centred Care - GPCC

The University of Gothenburg Centre for Person-centred Care - GPCC is an interdisciplinary research centre, established in January 2010, with the support of the Swedish government's strategic investment in health and care research. The centre performs interventional and explorative studies on person-centred care in a wide variety of health care settings. This research has established that person-centred care is capable of enhancing the efficiency of the care process. Apart from considerable monetary savings resulting from amongst other things shorter hospital stays, significant positive effects from a patient perspective have been seen, including improved self-efficacy and increased patient satisfaction, as care is adapted to each individual person and his or her resources are utilised. In addition the centre applies its findings to implementation, innovation and educational courses and workshops in academic and healthcare settings.

GPCC's vision: Sustainable health through sustainable care: To prevent and reduce suffering and strengthen the efficiency ...

Reshaping the workforce to deliver the care patients need

Workforce structure is one of the most difficult things to modulate in health systems. Current transition to new models of care could be a good opportunity to make workforce structure match actual needs of systems and populations. In this report, published by the Nuffield Trust, it is analyzed how organizations could reshape their current workforce and what the benefits would be:

There is a need to evolve from an illness-based system to a patient-centred system.
Workforce should meet future needs by incorporating professionals with a vision aligned with future models of care.
There are opportunities to develop the current workforce at all grades: from redeploying support staff, extending the skills of registered professionals and training advanced practitioners.
There is good evidence that support workers can provide good-quality, patient-focused care as well as reduce the workload of more highly qualified staff. Investment here could provide a cost-effective and rapid solution to ...

Elaboration of the Gothenburg model of person-centred care

OBJECTIVE:

In this paper, it is aimed to explore professionals understanding of PCC routines as they implement the GPCC model in a range of different settings.

METHODS:

It is conducted a qualitative study and interviewed 18 clinician-researchers from five health-care professions who were working in seven diverse GPCC projects.

RESULTS:

Interviewees accounts of PCC emphasized the ways in which persons are seen as different from patients; the variable emphasis placed on the person's goals; and the role of the person's own resources in building partnerships.

CONCLUSION:

This study illustrates what is needed for health-care professionals to implement PCC in everyday practice: the recognition of the person is as important as the specific practical routines. Interviewees described the need to change the clinical mindset and to develop the ways of integrating people's narratives with clinical practice.

A guide to enabling the spread of person- and community-centred approaches for health and wellbeing

This guide is addressed to people who champion person- and community-centred approaches in health and social care. It is part of the NHS England-funded Realising the Value programme led by Nesta and the Health Foundation, which seeks to develop person- and community-centred approaches for health and wellbeing. Two main contents are included in the guide: a framework for understanding and changing behaviour, and real-world examples of how these changes happen in practice.
Change is more likely to spread when both statutory organisations and community-based organisations align approaches. For this reason the guide feature case studies from both parts of the system.  They are colour coded to enable different audiences to navigate the guide easily.

Tenacious assumptions of person-centred care? Exploring tensions and variations in practice.

In recent decades, the ‘tenacious assumptions’ of biomedicine regarding the neutrality and universality of its knowledge claims have been significantly challenged by the growth of new collaborative and patient-focused models of Healthcare delivery. In this article, we discuss and critically reflect upon one such alternative Healthcare model developed at the University of Gothenburg Centre for Person-Centred Care in Sweden. This centre uses three clinical routines of narrative, partnership and documentation to provide Healthcare to people recognized as unique individuals rather than patients. Person-centred care in Gothenburg and more broadly is based on the assumption that a person is independently capable of reasoning and verbal expression and willing to provide clear and genuine narratives and cooperate with Healthcare professionals. However, we argue that by emphasizing individual capabilities of reasoning and verbal expression, an unnecessarily limited conception of personhood risks being imposed on these routines. Drawing upon semi-structured interviews with researchers in ...

Integrating terminology for integrated care

The plan is to transform a fragmented and largely uncoordinated model into a multidimensional care model that integrates social care systems with health care systems. To achieve this integration successfully, a strong conceptual framework must be constructed, in which terminology will play an important part. Since language mediates a particular vision of reality, when creating a new care model it seems important to focus on terminology. 

Person-centred care in 2017: Evidence from service users

Policy makers have been aspiring to a ‘patient-centred NHS’ in England for at least 20 years. In 2008, patient experience became a key part of the national definition of quality in healthcare; and in 2012 that was codified in law.
Person-centred care has become an increasingly prominent stated ambition both of national policy and local practice. In 2013, the Department of Health and all the system leading bodies across health and social care in England declared a shared commitment to making ‘person-centred coordinated care’ the normiv.

What difference, if any, have these stated ambitions made to the experiences of people who need and use services and support? We wanted to know.

National Voices stands for people being in control of their health and carev. From 2011 we have been at the forefront of making the case for person-centred care. There is a growing body of evidence that person-centred approaches are ...

Person-centred Care Around the World

This directory of person-centred care organisations around the world was produced as part of an international environment scan of the field of person-centred care undertaken by Health Policy Partnership. This useful tool highlights the leading international centres working on similar aspects of person-centred care to the Health Foundation. The tool can help to identify person-centred care research, measurement and implementation ‘hot spots’ in different settings globally. The tool enables collaboration between those working on person-centred care by providing key information on the type of work being undertaken on person-centred care. Please share this tool with contacts and colleagues to encourage greater collaboration.

A guide to enabling the spread of person- and community-centred approaches for health and wellbeing

This guide is addressed to people who champion person- and community-centred approaches in health and social care. It is part of the NHS England-funded Realising the Value programme led by Nesta and the Health Foundation, which seeks to develop person- and community-centred approaches for health and wellbeing. Two main contents are included in the guide: a framework for understanding and changing behaviour, and real-world examples of how these changes happen in practice. Change is more likely to spread when both statutory organisations and community-based organisations align approaches. For this reason the guide feature case studies from both parts of the system. They are colour coded to enable different audiences to navigate the guide easily.

New models of home care

Policy-makers have outlined their ambitions to provide joined-up care closer to home and enable people to remain independent and in their own homes. Home care will be a central component of realising these ambitions. However, there are serious concerns about the state of the home care market
and the quality of care service users receive.
In this case, the present report summarises the evidence on innovations and models of home care that demonstrate potential in the following key opportunity areas:
1. Technology and digital
2. Co-ordinated care planning
3. Recruitment and retention
4. Autonomous team working
5. Alternative approaches to commissioning
6. Personalisation
7. Integrated care approaches
8. Community assets and connections
9. Family-based support and communal living
.

Reconceptualising Person-Centered Service Models as Social Ecology Networks in Supporting Integrated Care

Efforts to address problems such as mental health, poverty, social exclusion, and chronic disease have often proven resistant to traditional policies or interventions. This paper takes up the challenge and present a pioneering new method of analysis in drawing on theoretical and methodological extensions of two prominent approaches, namely, social network analysis and developmental social ecology. Considered in combination, these two seemingly disparate approaches frame a powerful new way of thinking about person-centred care, as well as offer a methodologically more rigorous set of analytical tools. The conceptual model developed from this combination offers to bridge the apparent disconnect between service integration levels and patient needs in such a way as to direct optimal effort to interventions at the individual level and to provide a new innovative approach to the delivery of integrated care.

Integrated care for older people (ICOPE): guidance for person-centred assessment and pathways in primary care

The ICOPE guidance for person-centred assessment and pathways in primary care (ICOPE Handbook) helps community health and care workers put the recommendations outlined in the ICOPE Guidelines into practice. The Handbook assists with setting person-centred goals, screening for loss in a range of domains of intrinsic capacity and assessing health and social care needs to develop a personalised care plan. The care plan may include multiple interventions to manage declines in intrinsic capacity, provide social care and support, support self-management and support caregivers. The domains of intrinsic capacity include cognitive decline, limited mobility, malnutrition, visual impairment, hearing loss and depressive symptoms.

WHO launches an innovative package of tools to support person-centred and integrated care for older people

On the International Day of the Older Person (1st October) the World Health Organization (WHO) released a package of tools to support the implementation of the Integrated Care for Older People (ICOPE) approach.

ICOPE, based on the WHO Framework on integrated people-centred health services, has been developed in the context of populations around the world ageing rapidly. It enables health and long-term care systems-and the services within them-to respond optimally to the unique, varied and often complex needs of older people.

The package of tools includes: the ICOPE Implementation Framework (guidance for policy makers and programme managers to assess and measure the capacity of services and systems to deliver integrated care at the community level); the ICOPE Handbook, which describes practical care pathways to detect declines in intrinsic capacity and develop personalised care plans; and the ICOPE handbook App, which helps implement ICOPE in community care settings.

Access ICOPE tools ...

Integrated Care for Older People (ICOPE)

How to adapt person-centered health services to ageing populations?

Every older person, everywhere, should have access to high quality and person-centred health services. That's why the World Health Organization has published guidelines on Integrated Care for Older People.

Learn more here: https://www.who.int/ageing/health-systems/icope/en/ and here: https://www.who.int/ageing/publications/guidelines-icope/en/

Populations around the world are rapidly ageing. It will increase demand for primary health care and long-term care, require a larger and better trained health workforce and intensify the need for age-friendly environments. These investments can enable the many contributions of older people – whether it be within their family, to their local community or to society more broadly. Universal health coverage for older people means quality health services that are integrated and person-centered.

Societies that adapt to this changing demographic and invest in Healthy Ageing can enable individuals to live both longer and healthier lives and for societies to ...

From protocolized to person-centered chronic care in general practice: study protocol of an action-based research project (COPILOT)

The management of people with multiple chronic diseases challenges health care systems designed around single disease. Patients with multimorbidity often receive highly fragmented care that may lead to inefficient, ineffective and potentially harmful treatments and neglect of essential health needs. A more comprehensive, person-centered approach is advocated for persons with multiple morbidities. However, examples on how to provide more person-centered care and evidence of its impact are scarce.
The aim of this study was to develop a proactive person-centered care approach for persons with (multiple) chronic diseases in general practice, and to explore the impact on ‘Quadruple aims’: experiences of patients and professionals, patient outcomes and costs of resources use.

Partnership, Person-Centredness in Health Care

Person-centred care is an emerging concept in health care. Many people ask what is new about it, and as a matter of fact many health care professionals believe that they work in a person-centred way already. But shifting to a person-centred care practice often involves a profound change in culture and structure, and the key is a different approach in seeing the patient as a partner. The main thing is about being able to listen. Being able to listen to the patient and co-create a care plan; to create a partnership in health care.

The University of Gothenburg Centre for Person-centred Care - GPCC, performs research, education and innovation in person-centred care. Many of the centre’s projects are performed in partnership with Sahlgrenska University Hospital, one of the biggest in Europe, which is closely linked to the University via the The Sahlgrenska Academy.

This short film sets the scene by ...

Mutual Meetings Free training programme in person-centred care available to all online

Free training programme in person-centred care available to all online! All you need is some time, some pens and post-it-notes.

Ten training sessions

Using the online course, Mutual meetings, is free of charge. It is carried out in groups of four to six health and care professionals. The course guides the group, step by step, through theory, discussion and exercises, which can be implemented directly in their everyday work.

Questions raised during the course may for example be how far employees take into account the patients’ own expert knowledge of themselves, how well the patients’ perceptions of their symptoms are understood, and how joint care planning can be documented.

The three modules of the training — the partnership, the patient narrative and documentation — comprise a total of ten occasions lasting 50 minutes each. However, depending on the desired outcome, the training can be shortened. The sessions are always headed by someone ...

Are patients ready for integrated person-centered care? A qualitative study of people with epilepsy in Ireland

The National Clinical Programme for Epilepsy (NCPE) in Ireland aims to deliver a holistic model of integrated person-centered care (PCC) that addresses the full spectrum of biomedical and psychosocial needs of people with epilepsy (PwE). However, like all strategic plans, the model encompasses an inherent set of assumptions about the readiness of the environment to implement and sustain the actions required to realize its goals. In this study, through the lens of PwE, the Irish epilepsy care setting was explored to understand its capacity to adopt a new paradigm of integrated PCC.  

What do the healthcare experiences of people with long-term conditions tell us about person-centred care? A systematic review.

Growing numbers of people now live with long term conditions. For each person, the challenges are multiple and unique to that individual. In recognition of this, health policy places greater emphasis on the delivery of person-centred care (PCC). However, patients report declining levels of such care. One reason for this may be a mismatch between patient and professional/policy understanding of PCC. PCC does not depend on the efforts of the clinician alone, but results from a collaboration with the patient and needs to be enabled by the wider organisational and educational systems.

A “Behind-the-Scenes” Look at Interprofessional Care Coordination: How Person-Centered Care in Safety-Net Health System Complex Care Clinics Produce Better Outcomes

While the effectiveness of team-based care and wrap-around services for high utilizers is clear, how complex care clinics deliver effective, person-centered care to these vulnerable populations is not well understood. This paper describes how interactions among interprofessional team members enabled individualized, rapid responses to the complex needs of vulnerable patients.

Paradoxes of person centred care: A discussion paper

Towards an Integrated Care Organisation from a CEO Perspective

Many experimental projects towards Person-Centred Care (PCC) are successful in the early stages, but founder when the attempt is made to scale them up to encompass the whole organisation. This case study therefore focusses on one manager’s attempts to extend the successes of a preliminary project ‘Etxean Ondo’ that aimed to provide adequate support for the elderly living at home or in nursing homes, as well as for their families and care professionals.

Achieving Person-Centred Health Systems

The idea of person-centred health systems is widely advocated in political and policy declarations to better address health system challenges. A person-centred approach is advocated on political, ethical and instrumental grounds and believed to benefit service users, health professionals and the health system more broadly. However, there is continuing debate about the strategies that are available and effective to promote and implement ‘person-centred’ approaches.This book brings together the world’s leading experts in the field to present the evidence base and analyse current challenges and issues. 

Understanding Young People and Their Care Providers’ Perceptions and Experiences of Integrated Care Within a Tertiary Paediatric Hospital Setting, Using Interpretive Phenomenological Analysis

Benefits of integrated care include improved health outcomes and more satisfaction with experiences of care for consumers. For children and young people with chronic and complex health conditions, their care may be fragmented due to the multitude of healthcare providers involved. This paper describes the experiences of integrated care in a paediatric tertiary hospital.

GPCC at SASUF 2020: Person-centred eHealth in healthcare

The University of Gothenburg Centre for Person-Centred Care (GPCC) is providing this workshop "Person-centred eHealth in healthcare", on 25 November 2020, within the South Africa - Sweden University Forum 2020 event, online.

The goal with this event is to discuss innovative strategies to integrate person-centred care in healthcare. These discussions about person-centred care in Sweden and South Africa intend to give new perspectives regarding new technologies that have the purpose to contribute to the development of person-centred care approaches. *This session will be recorded*.

Programme

(Central European Time)

9:00-9:05, Welcome, Stefan Nilsson, Associate professor & Ensa Johnson, PhD

9:05-9:20, Biomarkers as evaluation of a digital tool – Is it possible?, Jonas Bergquist, Professor

9:20-9:35,South African children with cancer sharing their lived experience in coping with their illness and treatment, Karen van Zijl, PhD & CHOC social workers

9:35-9:50, Person-centred care and Universal Design as theoretical ...

Finding the Person in Electronic Health Records. A Mixed-methods Analysis of Person-centered Content and Language

The co-creation and sharing of documentation of person-centered care is important, but challenging in clinical practice. Online access to health records is considered essential to increase patient participation and empowerment in person-centered care provision.

The aims of this study were (1) to identify the extent of person-centered content in medical inpatient records and discharge letters; (2) to describe the characteristics of the language and rhetoric used in discharge letters.

Established norms for documentation in healthcare are a barrier to person-centered documentation. Patients’ needs and preferences about documentation should be explored to increase understanding of how person-centered documentation can be achieved in clinical practice.

Webinar: A European standard for patient participation in person-centred care

Welcome to our free webinar:

Webinar: A European standard for patient participation in person-centred care

Date: Thursday 25 February 2021

Time: 14.00-15.30 CET (GMT+1)

Registration required. Click here to register.

The webinar link will be sent to you when you have registered.

Event details: The European standard Patient involvement in healthcare - Minimum requirements for person-centred care (CEN/TC 450) was adopted in 2020. It can be used to facilitate the introduction of, work with and research on person-centred care in a number of different ways by health and care actors, patient organisations, researchers, businesses and others. It is the first in its field in Europe.

Join our webinar to hear three members of the standardisation committee present the standard, along with potential areas of use.

The webinar will be held in English, and it will be recorded.

Interaction: We welcome your questions, either during the webinar or ...

Successful implementation of integrated care in Slovenian primary care

For the purpose of celebrating the 40th anniversary of Alma Ata declaration, the WHO published a successful model of integrated patient care being performed in Slovenia. After two years, the WHO experts evaluated the success in practise during a visit to the Slovenian primary care environment. This report showed that Slovenia was a notable exception regarding developing effective primary care systems. The country has an impressive primary care which performs very well.

The 24th International Philosophy of Nursing Conference IPONS conference 2021

The 24th International Philosophy of Nursing Conference IPONS. Personhood: philosophies, applications and critiques in healthcare. A three-day digital conference at the University of Gothenburg, Sweden. Keynote speakers are: Inger Ekman, Richard Sawatzky Jonna Bornemark Elvis Imafidon Bengt Kristensson Uggla.

Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care: An Action Research Study

The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users’ narratives.

An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service users’ representative groups. Thematic analysis was used to analyse the data. Three major themes were co-produced as essential care elements. These were: ‘My experience of healthcare’, ‘Care that I am confident in’ and ‘My journey through healthcare’. Through an IPPOSI partner project steering group and their membership groups’ contribution, these themes were further refined into a definition of person-centred coordinated care and nineteen related generic descriptors.

Key findings demonstrate that within complex, fragmented healthcare systems, the subjective expectations of service users should be ...

Adoption of the concept of person-centred care into discourse in Europe: a systematic literature review

This study aims to describe how person-centred care, as a concept, has been adopted into discourse in 23 European countries in relation to their healthcare systems (Beveridge, Bismarck, out of pocket). Our findings clarify those countries using the Beveridge healthcare model rank higher on accepting/adopting the concept of person-centered care in discourse. To adopt the concept of person-centred care in discourse requires a systematic approach at all levels in the organisation—from the national (politicians) and regional (guideline) to the local (specific healthcare settings) levels of healthcare.

Commentary: how person-centred is pharmaceutical care?

Person-centred care in TB

The WHO End TB Strategy includes integrated patient-centred care and prevention within one of its three pillars and has global targets aimed at ending the TB epidemic by the year 2030. Here, we describe the tensions and challenges that may undermine the approach and explore opportunities to align person-centred care with other health system goals. 

Philosophical knowledge is warranted for the successful implementation of person-centred care

One potentially restrictive environment of person-centred care might be the intensive care unit (ICU) where RNs working in ICUs on a daily basis are caring for critically ill patients in a highly technological and stressful milieu. Nursing care for critically ill patients at the ICU is described as task-oriented and mainly based on the patient’s medical needs. The purpose of this contemporary issue paper is to suggest that a photograph of the patient could be used as a tool to support RNs working in ICU in applying person-centred care and their understanding of the philosophical underpinnings for person-centred care. 

Person-centred care: looking back, looking forward

An interdisciplinary group of clinical and non-clinical academics in Sweden created a research centre for the study of person-centred care (PCC) in long-term illness. The GPCC steering committee formulated a position paper with three ‘simple routines’ to initiate, implement, and safeguard PCC in daily clinical practice. 

Inclusion of person-centred care in medical and nursing undergraduate curricula in the UK: Interviews and documentary analysis

We aimed to understand how person-centred care (PCC) is represented in UK professional standards for undergraduate medical/nursing education and explored how these are reflected in programme provision. Development of a PCC skills competence framework would increase consistency and support teaching and assessment in undergraduate curricula.

The innovation characteristics of person-centred care as perceived by healthcare professionals: an interview study employing a deductive-inductive content analysis guided by the consolidated framework for implementation research

Person-centred care (PCC) is promoted as an innovation that will improve patients’ rights and increase their participation in healthcare. Experience shows that the implementation of PCC is challenging and often results in varying levels of adoption. How health care professionals (HCPs) perceive an innovation such as PCC is an important factor to consider in implementation. 

Person-Centred Care Transformation in a Nursing Home for Residents with Dementia

Conventional nursing homes in Singapore adopt an institutional and medical model of care with a focus on safety and risk management. As such, less regard is placed on upholding the dignity and autonomy of the resident, which compromises quality of care and the well-being of the resident. Today, person-centred care (PCC) has become synonymous with high-quality care that sustains the well-being and personhood of the care recipient.

"Care is not care if it isn't person-centred": A content analysis of how Person-Centred Care is expressed on Twitter

Person-Centred Care (PCC) has been the subject of growing interest in recent decades. This study aimed to investigate the PCC topics presented by different stakeholder groups on Twitter and to explore the perceptions of PCC within the content of the tweets.

Person centred care toolkit

The person-centred care toolkit aims to assist Credentialled Diabetes Educators and other health professionals to understand the benefits of and to adopt person-centred care practices.

Critical care nurses’ experiences of working during the first phase of the COVID-19 pandemic –Applying the Person-centred Practice Framework

In a short period, the COVID-19 pandemic has challenged healthcare systems and societies worldwide. ICUs have been described as ‘the frontline of a war’ against the disease  Critical care nurses (CCNs) in this frontline were and are still engaging with some of the most challenging ethical issues of our time; these include limited resources, a lack of personal protective equipment (PPE) and professionals’ obligations to care for patients.  At the same time, they were expected to provide person-centred care (PCC) with quality, as they had done before the pandemic.

The influence of nursing home managers’ leadership on person-centred care and stress of conscience: A cross-sectional study

Leadership and stress are common concepts in nursing, and this study explores empirically the connection between leadership and stress of conscience in the context of aged care practice. Previous literature has shown that when staff are unable to carry out their ethical liabilities towards the residents, feelings of guilt may occur among staff, which may be an expression of stress of conscience. Although leadership has been described as crucial for staff’s work perceptions of stress as well as for person-centred practices, the influence of nursing home managers’ leadership on stress of conscience among staff and person-centred practices is still not fully explored. This study attempts to address that knowledge gap by exploring the relationship between leadership, person-centred care, and stress of conscience.

The relationship between person-centred care and the intensive care unit experience of critically ill patients: A multicentre cross-sectional survey

Person-centred care has the potential to improve the patient experience in the intensive care unit (ICU). The aim of this study was to investigate the relationship between person-centred care and the ICU experience of critically ill patients. We observed that person-centred care was positively related to most of the ICU experiences of critically ill patients except for recall of experience. 

Associations between person-centred care and job strain, stress of conscience, and intent to leave among hospital personnel

Hospitals have experienced difficulty in retaining qualified healthcare personnel. Previous studies have shown that working in a person-centred environment could offset this challenge, but research is scarce. The organisational and environmental support subscale of perceived PCC showed significant correlations with all explanatory variables, while the extent of personalising care subscale only correlated with job strain and intent to leave. Higher perceived PCC is associated with work-related factors in hospital departments.

Critical care nurses' experiences of working during the first phase of the COVID-19 pandemic - Applying the Person-centred Practice Framework

We need to prepare ahead of time so that nurses have optimal organisational prerequisites to be able to work in accordance with person-centred practice, also during pandemics and other crisis, which means to be able to give nursing care in accordance with the ill person's needs and resources.

Person-centred care and psychiatry: some key perspectives

This paper outlines the importance of person-centred approaches to the practice of contemporary medicine and psychiatry. In considering the many aspects of person-centred approaches it outlines some key perspectives, including freedom and human rights; improving individual practice and the quality of services; increasing clinicians’ work satisfaction; combining value-based and evidence-based practice; and the training of future generations of psychiatrists.

Systematic review of patient-engagement interventions: potentials for enhancing person-centred care for older patients with multimorbidity

Person-centred care based on systematic and comprehensive patient-engagement is gaining momentum across healthcare systems. Providing care that is responsive to the needs, values and priorities of each patient is important for patients, relatives and providers alike, not least for the growing population of older patients living with multi-morbidity and associated complex care trajectories.

Person-centred care and short oral treatment for rifampicin-resistant tuberculosis improve retention in care in Kandahar, Afghanistan

Aknowledging that people living with TB face multiple challenges in addition to TB disease and that better access to new diagnostic or treatment tools alone cannot improve RR-TB care outcomes, person-centred care has been introduced as one of the pillars of the EndTB strategy, which calls for integration of health services, inclusion of social support as part of clinical care. Therefore, person-centred care delivery and treatment regimens were adapted to better fit specific contextual challenges and the needs of the target population, retention in care improved among people with RR-TB in Kandahar, Afghanistan.

Effects of a person-centred and health-promoting intervention in home care services- a non-randomized controlled trial

Home care recipients have reported little self-determination and opportunity to influence their own care. Person-centred care focusing on involvement has improved the quality of life of older adults in health care and nursing homes; however, knowledge about the effects of person-centred interventions in aged care at home is sparse. The aim of this study was to study the effects of a person-centred and health-promoting intervention, compared with usual care, on health-related quality of life, thriving and self-determination among older adults, and on job satisfaction, stress of conscience and level of person-centred care among care staff.

The PanCareFollowUp Care Intervention : A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer

Long-term follow-up (LTFU) care, although endorsed, is not available for the majority of adult survivors of childhood, adolescence and young adult (CAYA) cancer. Barriers to implementation include lack of time, knowledge, personnel and funding. Sustainable solutions are urgently needed to address the needs of CAYA cancer survivors to improve the quality of life and reduce the burden of late effects on survivors, health care systems and society. The European Union–funded PanCareFollowUp project, initiated by the Pan-European Network for Care of Survivors after Childhood and Adolescent Cancer, was established to facilitate the implementation of person-centred survivorship care across Europe.

Long Term Exercise Engagement of Adults Living With Type Two Diabetes Is Enhanced by a Person-Centred Care Approach Delivered by Knowledgeable, Well Trained Health Care Professionals

Regular engagement in exercise or physical activity is a key evidence-based recommendation in the self-management of type 2 diabetes (T2D). This study explores Diabetes Community Exercise Programme (DCEP). The Diabetes Community Exercise Programme did motivate people with T2D to engage in exercise. Important to this was the emphasis on a person-centred approach that focussed on the health status monitoring and educational and social aspects of the programme, which in turn facilitated exercise engagement.

What matters most in acute care: an interview study with older people living with frailty

Healthcare outcome goals are central to person-centred acute care, however evidence among older people is scarce. Older people who are living with frailty have distinct requirements for healthcare delivery and have distinct risk for adverse outcomes from healthcare. There is insufficient evidence for whether those living with frailty also have distinct healthcare outcome goals. This study explored the nature of acute care outcome goals in people living with frailty.

Nurses’ perceived barriers to the delivery of person-centred care to complex patients: A qualitative study using theoretical domains framework

Complex patients have multiple physical and mental health problems, and their life is also greatly affected by sociocultural and economic determinants of health. These patients require person-centred care, but nurses often find it challenging to provide effective care to these patients due to their complex health needs. This study aims to determine nurses’ perceived barriers to the delivery of person-centred care to complex patients with multiple chronic conditions in acute care settings.

Rehabilitation Workforce Challenges to Implement Person-Centered Care

There is an increasing emphasis on developing person-centered care in rehabilitation settings. However, this care practice has not been fully implemented due to several factors. This study explores rehabilitation workforce perspectives on the barriers and facilitators to implementing person-centered care (PCC). Participants described barriers such as an unsupportive organization and leadership, staff constraints, heavy workload, and resistance to change. Unique to this study, a patient’s clinical characteristics were identified as barriers to person-centered care. As facilitators, they described leadership, staff satisfaction, a positive physical environment, training and education, and shared decision-making. It is essential to understand the perceptions of the rehabilitation workforce, as they play an integral role in providing PCC. This study serves as a guide to facilitate person-centered care, as it provides an understanding of key barriers and facilitators for its implementation in rehabilitation settings.

Measuring with quality: the example of person-centred care

Qualitative data analysis should be embedded in routine health service measurement, management and organizational practices. The rigorous use of such analyses should become an institutional norm, comparable to the routine use of quantitative data. Our case is intended to have general relevance, but we develop it by reference to person-centred care and patient-centred outcome measures (PCOMs). The increased use of qualitative data analysis of individualized PCOMs is a crucial complementary counterweight to steps towards the standardization of PCOMs. More broadly, our argument is that health care organizations cannot make confident judgements about whether they are offering appropriate care without collecting qualitative data on what matters to individual patients. Introducing properly supported and conducted qualitative data analyses is important in its own right, and also helps underpin the validity and usefulness of quantitative measurement.

How to implement person-centred care and support for dementia in outpatient and home/community settings: Scoping review

Little prior research focused on person-centred care and support (PCCS) for dementia in home, community or outpatient care. We aimed to describe what constitutes PCCS, how to implement it, and considerations for women who comprise the majority of affected persons (with dementia, carers). Despite the paucity of research on PCCS for dementia, synthesis of knowledge from diverse studies into a Framework provides interim guidance for those planning or evaluating dementia services in outpatient, home or community settings. Further research is needed to elaborate the Framework, evaluate PCCS for dementia, explore determinants, and develop strategies to implement and scale-up PCCS approaches. Such studies should explore how to tailor PCCS needs and preferences based on input from persons with dementia, and by sex/gender and other intersectional factors such as ethnicity or culture.

Person-centred care planning as foundational to clinical practice

The World Health Organization recently issued new guidance and technical packages for community mental health services, entitled “Promoting Person?Centred and Rights?Based Approaches”. As these documents make clear, within the sphere of mental health, the provision of person?centred care is itself an issue of human rights. This is not only true in the cases of involuntary or coercive treatments – when precautions and oversight must be exercised to ensure preservation of dignity and respect under exceptional circumstances – but with regard to all forms of mental health care. All mental health care, including clinical practice, needs to be fundamentally re?oriented toward the protection and extension of each individual's right to self?determination. Re?oriented, that is, to preserving the person's integrity as an individual while facilitating and promoting the person's pursuit of his/her own unique life goals.

Factors influencing the implementation of person-centred care in nursing homes by practice development champions: a qualitative process evaluation of a cluster-randomised controlled trial (EPCentCare) using Normalization Process Theory

Person-centred care (PCC) has been suggested as the preferred model of dementia care in all settings. The EPCentCare study showed that an adapted PCC approach was difficult to implement and had no effect on prescription of antipsychotics in nursing home residents in Germany. This paper reports the qualitative process evaluation to identify facilitators and barriers of the implementation of PCC in German nursing homes from the perspective of participating practice development champions.

Emergency Room Nurses’ Experiences in Person-Centred Care

Implementing person-centred care is often considered difficult in congested emergency rooms. The purpose of this study was to understand person-centred care experienced by emergency room nurses in depth and examine the essence of emergency room nurses’ lived experience of the person- centred care.

Person-centred care in primary care: What works for whom, how and in what circumstances?

This rapid realist review aims to explain how and why person-centred care (PCC) in primary care works (or not) among others for people with low health literacy skills and for people with a diverse ethnic and socioeconomic background, and to construct a middle-range programme theory (PT). The middle-range PT demonstrates that healthcare professionals (HCPs) should be trained and equipped with the knowledge and skills to communicate effectively (i.e. in easy-to-understand words, emphatically, checking whether the patient understands everything, listening attentively) tailored to the wishes, needs and possibilities of the patient, which may lead to higher satisfaction.

The principles of person-centredness in quality patient care-Evaluation of the Community Pharmacy Services Quality Guidelines in Estonia

Person-centredness is considered a key component of quality healthcare and the core competence of all healthcare professionals. However, person-centred care (PCC) is not often considered a priority for improving the quality of healthcare. This study aimed to evaluate to what extent the PCC principles are included in the Community Pharmacy Services Quality Guidelines (CPSQG) in Estonia.

GPCC Person-centred Care Arena webinar 1: Person-centred care in Europe

A co-ordinated care based on the patient's resources is advocated internationally by, among others, the World Health Organization. Person-centred care is one way of achieving this goal. But while person-centred care has been a buzz word for some time, how person-centred is European health care in reality? And what are the obstacles to and enablers for Europe becoming more person-centred? Speakers: Ulrika Winblad, Professor of Health Services Research, Uppsala university, Sweden Eric Carlström, Professor in Health Care Sciences, Leadership and Organization, Sahlgrenska Academy, University of Gothenburg, Sweden Margareta Haag, Chair Swedish Network Against Cancer and member of GPCC's Person Council for Patients and Relatives/Carers Joakim Öhlén, Professor and Centre Director, University of Gothenburg Centre for Person-centred Care - GPCC, Sweden

Registration now open. Information on how to join the webinar will be sent out nearer to the date.

Training course in person-centred care is launched by GPCC researchers in the DR Congo

A training course in person-centred care has been carried out in the Democratic Republic of the Congo by researchers at The University of Gothenburg Center for Person-centred Care (GPCC) in Sweden. The course participants had various professions such as midwives, nurses and physicians. The researchers can report on a very positive reception and great commitment, with the potential to have a great future impact.

Beyond the Point of No Return: A Discourse Analysis of Healthcare Professionals’ Perceptions of Digitally Supported Person-Centred, Integrated, and Proactive Care

Most countries are facing a common challenge: a rise in the number of chronically ill patients and limited medical resources. The combination of digital support and the principles of person-centred, integrated, and proactive care (Digi-PIP care) services constitutes the most ambitious initiative for patients with long-term needs. While there is research on digital support, person-centred, integrated, and proactive care, the combination of these components has been less explored.

The data set consisted of 29 qualitative interviews with healthcare professionals involved in four Nordic Digi-PIP care initiatives. Building on prevailing discourses on the modernisation of healthcare, we used discourse analysis to determine how the professionals discussed their perceptions and experiences of the care transformation initiatives.

We identified four discourses illustrating that, despite challenges with adoption, the vision of Digi-PIP care was strongly embedded among participants across professions and contexts. In contrast to the discourses on their separate components, the emergent discourses ...

Patient and health-care provider experience of a person-centred, multidisciplinary, psychosocial support and harm reduction programme for patients with harmful use of alcohol and drug-resistant tuberculosis in Minsk, Belarus

Tuberculosis (TB) often concentrates in groups of people with complex health and social issues, including alcohol use disorders (AUD). Risk of TB, and poor TB treatment outcomes, are substantially elevated in people who have AUD. Médecins sans Frontières and the Belarus Ministry of Health have worked to improve treatment adherence in patients with multi-drug or rifampicin resistant (MDR/RR)-TB and harmful use of alcohol. In 2016, a person-centred, multidisciplinary, psychosocial support and harm reduction programme delivered by TB doctors, counsellors, psychiatrists, health-educators, and social workers was initiated. In 2020, we described patient and provider experiences within the programme as part of a wider evaluation.

Nurses' experiences of person-centred care planning using video-conferencing

The aim was to illuminate how nurses experience person-centred care planning using video conferencing upon hospital discharge of frail older persons. This study provides valuable insights into challenges associated with care planning via video conferencing. The meeting format, that is video conferencing, is perceived as a barrier that makes the interaction challenging. Shortcomings in video technology make a person-centred approach difficult. The person-centred approach is also difficult for nurses to maintain when the older person or relatives are not involved in the planning.

Can We Deliver Person-Centred Obesity Care Across the Globe?

This article discusses what person-centred care is; why it is critically important in providing effective care of a chronic, complex disease like obesity; and what can be learnt from international best practice to inform global implementation.

Tracking, naming, specifying, and comparing implementation strategies for person-centred care in a real-world setting: a case study with seven embedded units

The implementation of person-centred care (PCC) is advocated worldwide. Stakeholders in charge of implementing PCC as a broad-scale change across the health care sector face two intertwined and complex challenges. First, making sense of PCC as an intervention with complex innovation characteristics and second, staging implementation of PCC by choosing appropriate implementation strategies. We aimed to explore one of these challenges by tracking, naming, specifying, and comparing which strategies and how strategies were enacted to support the implementation of more PCC in a real-world setting represented by one health care region in Sweden.

A comparison of three organisational levels in one health care region in Sweden implementing person-centred care: coupled, decoupled or recoupled in a complex organisation

Establishing more substantial patient involvement in the health care has become fundamental to Western health care services. Person-centred care (PCC) has been developed as a way of working that involve the patients and family members. However, the implementation of PCC in clinical practice has proven to be challenging. The aim of this study was to explore the congruence of managers’ perceptions and understanding of various aspects of PCC across three organisational levels in one health care region in Sweden in terms of coupling, decoupling and recoupling.

Examining the knowledge work of person-centred care: Towards epistemic reciprocity

It is increasingly recognised that when healthcare staff fails to give adequate credence to patients' illness-related knowledge work, this epistemic injustice undermines person-centred care. Therefore, we set out to examine the experiences of people with long-term conditions with knowledge work in healthcare settings to identify changes needed to strengthen person-centred primary care.

Highlights

Nursing students' experiences and perceptions of barriers to the implementation of person-centred care in clinical settings: A qualitative study

This study explored the barriers that nurses face while delivering person-centred care,  through  the  nursing  students'  experiences  during  clinical  prac-tice. This study showed that the barriers to implement person-centred care in clinical settings were busyness, educational challenges, lack of awareness, lack of relationship building and lack of policy approaches. 

96th EGPRN meeting

The 96th EGPRN meeting will be held at the University of Split, School of Medicine in Split, Croatia between 11 - 14 May 2023. The theme of this meeting is "Person-centred care and its outcomes in primary care".

The World Health Organization (WHO) Integrated Care for Older People (ICOPE) Framework: A Narrative Review on Its Adoption Worldwide and Lessons Learnt

The World Health Organization (WHO) recently published guidelines on the implementation of a new Integrated Care for Older People (ICOPE) framework in 2017–2019. It is an integrated care framework for the screening, assessment, and management of intrinsic capacity (IC) declines. We aimed to examine where the early adopters of ICOPE are across the world, how these study teams and sites plan to apply the framework or have applied it, and the lessons learnt for future adopters. We systematically searched electronic medical and social sciences databases and grey literature published between 31 October 2017 and 31 March 2022. Records were systematically selected using precise inclusion criteria. There were 18 ICOPE study teams and sites across the 29 selected records. Of the 18 study teams and sites, seven were in the development stage, seven conducted feasibility studies, and four have commenced implementation of interventions that applied the ICOPE framework. Future ICOPE ...

Understanding integrated care through patient journeys

In recent years, considerable investment has been made towards healthcare service redesign and reform in response to an increasingly diverse and ageing patient population. The shift towards person-centred care requires holistic care management approaches and has prompted health services to consider changing the ways they deliver care

Development of a Person-Centred Integrated Care Approach for Chronic Disease Management in Dutch Primary Care: A Mixed-Method Study

To reduce the burden of chronic diseases on society and individuals, European countries implemented chronic Disease Management Programs (DMPs) that focus on the management of a single chronic disease. However, due to the fact that the scientific evidence that DMPs reduce the burden of chronic diseases is not convincing, patients with multimorbidity may receive overlapping or conflicting treatment advice, and a single disease approach may be conflicting with the core competencies of primary care. In addition, in the Netherlands, care is shifting from DMPs to person-centred integrated care (PC-IC) approaches.

The impact of artificial intelligence on the person-centred, doctor-patient relationship: some problems and solutions

Artificial intelligence (AI) is often cited as a possible solution to current issues faced by healthcare systems. This includes the freeing up of time for doctors and facilitating person-centred doctor-patient relationships. However, given the novelty of artificial intelligence tools, there is very little concrete evidence on their impact on the doctor-patient relationship or on how to ensure that they are implemented in a way which is beneficial for person-centred care. Given the importance of empathy and compassion in the practice of person-centred care, we conducted a literature review to explore how AI impacts these two values. Besides empathy and compassion, shared decision-making, and trust relationships emerged as key values in the reviewed papers. We identified two concrete ways which can help ensure that the use of AI tools have a positive impact on person-centred doctor-patient relationships. These are (1) using AI tools in an assistive role and (2) adapting medical ...